Compassionate Allowances

Social Security has an obligation to provide benefits quickly to applicants whose medical conditions are so serious that their conditions obviously meet disability standards.

Compassionate allowances are a way of quickly identifying diseases and other medical conditions that invariably qualify under the Listing of Impairments based on minimal objective medical information. Compassionate allowances allow Social Security to quickly target the most obviously disabled individuals for allowances based on objective medical information that it can obtain quickly.

The Current List of Compassionate Allowance Conditions, as of May 2013:

  1. Acute Leukemia
  2. Adrenal Cancer – with distant metastases or inoperable, unresectable or recurrent
  3. Adult Non-Hodgkin Lymphoma
  4. Adult Onset Huntington Disease
  5. Aicardi-Goutieres Syndrome
  6. Alexander Disease (ALX) – Neonatal and Infantile
  7. Allan-Herndon-Dudley Syndrome
  8. Alobar Holoprosencephaly
  9. Alpers Disease
  10. Alpha Mannosidosis – Type II and III
  11. Alstrom Syndrome
  12. Alveolar Soft Part Sarcoma
  13. Amegakaryocytic Thrombocytopenia
  14. Amyotrophic Lateral Sclerosis (ALS)
  15. Anaplastic Adrenal Cancer – with distant metastases or inoperable, unresectable or recurrent
  16. Angelman Syndrome
  17. Aortic Atresia
  18. Aplastic Anemia
  19. Astrocytoma – Grade III and IV
  20. Ataxia Telangiectasia
  21. Batten Disease
  22. Beta Thalassemia Major
  23. Bilateral Optic Atrophy- Infantile
  24. Bilateral Retinoblastoma
  25. Bladder Cancer – with distant metastases or inoperable or unresectable
  26. Breast Cancer – with distant metastases or inoperable or unresectable
  27. Canavan Disease (CD)
  28. Carcinoma of Unknown Primary Site
  29. Caudal Regression Syndrome – Types III and IV
  30. Cerebro Oculo Facio Skeletal (COFS) Syndrome
  31. Cerebrotendinous Xanthomatosis
  32. Child Neuroblastoma – with distant metastases or recurrent
  33. Child Non-Hodgkin Lymphoma – recurrent
  34. Child T-Cell Lymphoblastic Lymphoma
  35. Chondrosarcoma – with multimodal therapy
  36. Chronic Myelogenous Leukemia (CML) – Blast Phase
  37. Congenital Lymphedema
  38. Cornelia de Lange Syndrome
  39. Corticobasal Degeneration
  40. Creutzfeldt-Jakob Disease (CJD) – Adult
  41. Cri du Chat Syndrome
  42. Degos Disease – Systemic
  43. DeSanctis Cacchione Syndrome
  44. Dravet Syndrome
  45. Early-Onset Alzheimer’s Disease
  46. Edwards Syndrome (Trisomy 18)
  47. Eisenmenger Syndrome
  48. Endometrial Stromal Sarcoma
  49. Endomyocardial Fibrosis
  50. Ependymoblastoma (Child Brain Tumor)
  51. Erdheim Chester Disease
  52. Esophageal Cancer
  53. Ewing Sarcoma
  54. Farber’s Disease (FD) – Infantile
  55. Fatal Familial Insomnia
  56. Fibrodysplasia Ossificans Progressiva
  57. Follicular Dendritic Cell Sarcoma – metastatic or recurrent
  58. Friedreichs Ataxia (FRDA)
  59. Frontotemporal Dementia (FTD), Picks Disease -Type A – Adult
  60. Fryns Syndrome
  61. Fucosidosis – Type 1
  62. Fukuyama Congenital Muscular Dystrophy
  63. Fulminant Giant Cell Myocarditis
  64. Galactosialidosis – Early and Late Infantile Types
  65. Gallbladder Cancer
  66. Gaucher Disease (GD) – Type 2
  67. Glioblastoma Multiforme (Adult Brain Tumor)
  68. Glioma Grade III and IV
  69. Glutaric Acidemia – Type II
  70. Head and Neck Cancers – with distant metastasis or inoperable or unresectable
  71. Heart Transplant Graft Failure
  72. Heart Transplant Wait List – 1A/1B
  73. Hemophagocytic Lymphohistiocytosis (HLH) – Familial Type
  74. Hepatoblastoma
  75. Hepatopulmonary Syndrome
  76. Hepatorenal Syndrome
  77. Histiocytosis Syndromes
  78. Hutchinson-Gilford Progeria Syndrome
  79. Hydranencephaly
  80. Hypocomplementemic Urticarial Vasculitis Syndrome
  81. Hypophosphatasia Perinatal (Lethal) and Infantile Onset Types
  82. Hypoplastic Left Heart Syndrome
  83. I Cell Disease
  84. Idiopathic Pulmonary Fibrosis
  85. Infantile Free Sialic Acid Storage Disease
  86. Infantile Neuroaxonal Dystrophy (INAD)
  87. Infantile Neuronal Ceroid Lipofuscinoses
  88. Inflammatory Breast Cancer (IBC)
  89. Jervell and Lange-Nielsen Syndrome
  90. Junctional Epidermolysis Bullosa – Lethal Type
  91. Juvenile Onset Huntington Disease
  92. Kidney Cancer – inoperable or unresectable
  93. Krabbe Disease (KD) – Infantile
  94. Kufs Disease – Type A and B
  95. Large Intestine Cancer – with distant metastasis or inoperable, unresectable or recurrent
  96. Late Infantile Neuronal Ceroid Lipofuscinoses
  97. Left Ventricular Assist Device (LVAD) Recipient
  98. Leigh’s Disease
  99. Leiomyosarcoma
  100. Lesch-Nyhan Syndrome (LNS)
  101. Lewy Body Dementia
  102. Lissencephaly
  103. Liver Cancer
  104. Lowe Syndrome
  105. Lymphomatoid Granulomatosis – Grade III
  106. Malignant Brain Stem Gliomas – Childhood
  107. Malignant Gastrointestinal Stromal Tumor
  108. Malignant Germ Cell Tumor
  109. Malignant Melanoma – with metastases
  110. Malignant Multiple Sclerosis
  111. Mantle Cell Lymphoma (MCL)
  112. Maple Syrup Urine Disease
  113. Mastocytosis – Type IV
  114. MECP2 Duplication Syndrome
  115. Medulloblastoma – with metastases
  116. Menkes Disease – Classic or Infantile Onset Form
  117. Merkel Cell Carcinoma – with metastases
  118. Merosin Deficient Congenital Muscular Dystrophy
  119. Metachromatic Leukodystrophy (MLD) – Late Infantile
  120. Mitral Valve Atresia
  121. Mixed Dementias
  122. MPS I, formerly known as Hurler Syndrome
  123. MPS II, formerly known as Hunter Syndrome
  124. MPS III, formerly known as Sanfilippo Syndrome
  125. Mucosal Malignant Melanoma
  126. Multicentric Castleman Disease
  127. Multiple System Atrophy
  128. Myoclonic Epilepsy with Ragged Red Fibers Syndrome
  129. Neonatal Adrenoleukodystrophy
  130. Nephrogenic Systemic Fibrosis
  131. Neurodegeneration with Brain Iron Accumulation – Types 1 and 2
  132. NFU-1 Mitochondrial Disease
  133. Niemann-Pick Disease (NPD) – Type A
  134. Niemann-Pick Disease-Type C
  135. Nonketotic Hyperglycinemia
  136. Non-Small Cell Lung Cancer – with metastases to or beyond the hilar nodes or inoperable, unresectable r recurrent
  137. Obliteratie Bronchiolitis
  138. Ohtahara Syndrome
  139. Ornithine Transcarbamylase (OTC) Deficiency
  140. Orthochromatic Leukodystrophy with Pigmented Glia
  141. Osteogenesis Imperfecta (OI) – Type II
  142. Osteosarcoma, formerly known as Bone Cancer  – with distant metastases or inoperable or unresectable
  143. Ovarian Cancer – with distant metastases or inoperable or unresectable
  144. Pancreatic Cancer
  145. Paraneoplastic Pemphigus
  146. Patau Syndrome (Trisomy 13)
  147. Pearson Syndrome
  148. Pelizaeus-Merzbacher Disease-Classic Form
  149. Pelizaeus-Merzbacher Disease-Connatal Form
  150. Peripheral Nerve Cancer – metastatic or recurrent
  151. Peritoneal Mesothelioma
  152. Peritoneal Mucinous Carcinomatosis
  153. Perry Syndrome
  154. Phelan-McDermid Syndrome
  155. Pleural Mesothelioma
  156. Pompe Disease – Infantile
  157. Primary Cardiac Amyloidosis
  158. Primary Central Nervous System Lymphoma
  159. Primary Effusion Lymphoma
  160. Primary Progressive Aphasia
  161. Progressive Multifocal Leukoencephalopathy
  162. Progressive Supranuclear Palsy
  163. Pulmonary Atresia
  164. Pulmonary Kaposi Sarcoma
  165. Retinopathy of Prematurity – Stage V
  166. Rett (RTT) Syndrome
  167. Rhabdomyosarcoma
  168. Rhizomelic Chondrodysplasia Punctata
  169. Roberts Syndrome
  170. Salivary Tumors
  171. Sandhoff Disease
  172. Schindler Disease – Type 1
  173. Severe Combined Immunodeficiency – Childhood
  174. Single Ventricle
  175. Sinonasal Cancer
  176. Small Cell Cancer (of the Large Intestine, Ovary, Prostate, or Uterus)
  177. Small Cell Lung Cancer
  178. Small Intestine Cancer – with distant metastases or inoperable, unresectable or recurrent
  179. Smith Lemli Opitz Syndrome
  180. Spinal Muscular Atrophy (SMA) – Types 0 and 1
  181. Spinal Nerve Root Cancer-metastatic or recurrent
  182. Spinocerebellar Ataxia
  183. Stiff Person Syndrome
  184. Stomach Cancer – with distant metastases or inoperable, unresectable or recurrent
  185. Subacute Sclerosing Panencephalitis
  186. Tabes Dorsalis
  187. Tay Sachs Disease – Infantile Type
  188. Thanatophoric Dysplasia – Type 1
  189. The ALS/Parkinsonism Dementia Complex
  190. Thyroid Cancer
  191. Transplant Coronary Artery Vasculopathy
  192. Tricuspid Atresia
  193. Ullrich Congenital Muscular Dystrophy
  194. Ureter Cancer – with distant metastases or inoperable, unresectable or recurrent
  195. Usher Syndrome – Type I
  196. Walker Warburg Syndrome
  197. Wolf-Hirschhorn Syndrome
  198. Wolman Disease
  199. Xeroderma Pigmentosum
  200. Zellweger Syndrome